Friday, December 5, 2014

Shabbatsgiving

The cousins at Thanksgiving dinner
(ignore the tree)

Apologies for no updates for two weeks.  I have actually been exhausted.  And something had to go.  But with too many phone calls to check in, and no time to respond - I'm back.  

The reason for the delay is the last two weeks have been none stop hospital time.  Last week Harry was having 5 treatments over 3 days.  In addition to Vincristine and doxyrubicon, he need Erwinnia 3 times a week.  These are 3 shots usually given simultaneously, and then monitored for 2 hours.  The whole process usually takes 41/2 hours.  After school.  So we are there until 630-7 pm.  It is tiring & somewhat tedious as it is mostly waiting.  Waiting in the waiting room.  Waiting for lab results.  And waiting after the medication.     And Harry is expected to being doing his school work so as to keep up.
Durwood, Julia & Megan administering Erwinnia

This week we added two additional appointments so we had a 5 for 5 week.  And Ken was away all week.  Thursday was going up to CHOP for a rheumatoid consult to see Dr. Burnham.  After afterwards getting to see cousin Grace Solomon for dinner.  

But we always try to build a little reward time afterwards which included, Dangerously Delicious Pies, Eammon's chipper, & Bullfrog bagels.  Trust me these are all unbelievable rewards!   

Also it was Thanksgiving.  As Harry had Wednesday & Friday treatments we could not go up to Philadelphia as we always have done. But Philly came to us.  Aunt Lisa, Aunt Jill, Uncle Matt, Owen, Jack & Pop Pop all came for a dinner at Diplomate (its from Philly!)  And the next night when I had time I cooked the traditional Shabbatsgiving.  (Shabbatsgiving is when you usually have to be vegetarian on Thanksgiving because it is not kosher, so on the first Shabbat following you wind up cooking a second Thanksgiving dinner with all trimmings.) 

And the big news - on Sunday Harry will go down to Florida for 4 days with the Chai Lifeline Foundation.  Full coverage coming next week.
Friday brunch with the whole family!
(sorry you can only see Pop Pop's arm)

















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