Sunday, June 8, 2014

Weekend Report

First off, big thanks to Nanci Bramson for driving Eden everywhere this week!  From playdates to bat mitzvah parties, Nanci has really done it all.

Last night, nurses were scared as Harry's dystolic blood pressure dropped to the 30s; however, this reading actually showed that he was actually in peak condition as athletic people tend to have lower numbers, and their bodies get the blood where it needs to go with greater efficiency.

Dr. Eugene Hwang has been in call this weekend.  He and Harry really hit it off.  Unfortunately he specializes in brain tumors (damn!).  He spent the majority of this morning's rounds chatting with Harry about DC biking because he is making the transition from mountain biking to road.

Today, Harry had five visitors from school.  In the morning, Sofia with an F and Maya, his friends from Chinese class, came and hung out with him.  The girls also watched Harry bond with his PCT, who has similar rheumatoid issues, as they discussed the pain and treatment plans.  Once Harry's doctors showed up, these girls, like everyone else, went to the Ronald McDonald Center.  (We seem to use the lounge more than anyone else. We Weinsteins now feel guilty that we almost never go to McDonald's, except on the rare occasions when we're in Israel or really thirsty and can't find a nearby Starbucks.)


In the afternoon, his school friends Sophia spelled PH, Maddie, and Milan all worked on a complicated Lego structure with Harry.  Every time they almost got it, something just had to go wrong.  Nevertheless, they had a great time laughing about the whole thing.

Dr. Sandy Burnham, Harry's rheumatologist from CHOP, drove down from Philly on a Sunday for a visit. The two shared pastrami sandwiches and discussed medical breakthroughs from different perspectives -- Sandy from the medical side and Harry from the impact on investing.  Anyone who is Facebook friends with Harry knows how crazy he is about Inovio Pharmaceuticals.


The day ended with a taco bar from Lauren Strauss and a training session with Coach Frank of Rock Creek Velo.  Even in the hospital, Frank won't let Harry skip practice.  Frank fit the bike and tried to sync the Wahoo kickr to an iPad.  Harry wanted do threshold training and asked Frank to investigate medical journal articles citing interval training and chemotherapy: the student instructs the master.


Unfortunately, Amy has to be in Chicago Monday and Milwaukee Tuesday.  Ken and Pop Pop will be overseeing things those days.  A huge shout-out to our star nurse team yesterday and today, Katelyn and Tammy.




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